Appendix IV: Resources for Help and Information
The following list is selective and restricted largely to national organizations in the United States, many of which have local chapters. Sites chosen are generally not-for-profit and usually offer information or support rather than advocacy. Telephone numbers and web sites are included as appropriate; however, such information changes frequently. Additional information is available through health care professionals, local libraries, telephone listings, and the Internet.
AGING
Administration on Aging
Washington, DC
800-438-4380 (information on Alzheimer's disease)
800-677-1116
800-877-8339 (TTY)
202-619-7501
www.aoa.gov
American Association of Retired People
Washington, DC
800-424-3410
202-434-2277
www.aarp.org
Benefits Check Up
The National Council on the Aging
www.benefitscheckup.org
Health and Age
Novartis Foundation for Gerontology
www.healthandage.com
Infoaging.org (AFAR)
New York, NY
212-703-9977
www.infoaging.org
National Association of Area Agencies on Aging
Washington, DC
202-296-8130
www.n4a.org
National Council on the Aging
Washington, DC
202-479-1200
202-479-6674 (TDD)
www.ncoa.org
National Institute on Aging
Bethesda, MD
800-222-2225
800-222-4225 (TTY)
301-496-1752
www.nia.nih.gov
Older Women's League
Washington, DC
800-825-3695
202-783-6686
www.owl-national.org
AIDS
AIDS Action
Washington, DC
202-530-8030
www.aidsaction.org
The American Foundation for AIDS Research
New York, NY
800-342-2437
212-806-1600
www.amfar.org
CDC National AIDS/HIV Hotline
800-342-2437
www.ashastd.org/nah
Gay Men's Health Crisis
New York, NY
800-243-7692
212-807-6655
212-645-7470 (TTY)
www.gmhc.org
National Association for People With AIDS
Washington, DC
202-898-0414
www.napwa.org
Project Inform
San Francisco, CA
800-822-7422
415-558-9051
415-558-8669
www.projinf.org
Universal Fellowship of Metropolitan Community Churches AIDS Ministry
Los Angeles, CA
213-464-5100
www.thebody.com/ufmcc/ufmcc.html
Women Alive
Los Angeles, CA
800-554-4876
323-965-1564
www.women-alive.org
ALCOHOLISM
(see also Drug Abuse)
Al-Anon Family Group Headquarters
Virginia Beach, VA
800-356-9996
757-563-1600
www.al-anon.alateen.org
Alcoholics Anonymous
New York, NY
212-870-3400
www.alcoholics-anonymous.org
National Clearinghouse for Alcohol & Drug Information
Rockville, MD
800-729-6686
800-487-4889 (TDD)
www.health.org
National Council on Alcoholism & Drug Dependence
New York, NY
800-622-2255
212-269-7797
www.ncadd.org
LifeRing Recovery
Oakland, CA
510-763-0779
www.lifering.org
ALLERGY & ASTHMA
Allergy and Asthma Network/Mothers of Asthmatics, Inc.
Fairfax, VA
800-878-4403
703-573-7794
www.aanma.org
American Academy of Allergy, Asthma, and Immunology
Milwaukee, WI
414-272-6071
www.aaaai.org
Asthma & Allergy Foundation of America
Washington, DC
800-717-8462
202-466-7643
www.aafa.org
ALZHEIMER'S DISEASE & OTHER DEMENTIAS
Alzheimer's Association
Chicago, IL
800-272-3900
312-335-8700
www.alz.org
Alzheimer's Disease Education & Referral Center
Silver Spring, MD
800-438-4380
www.alzheimers.org
The Alzheimer's Society
London, UK
www.alzheimers.org.uk
The Alzheimer's Society CJD Support Group
London, UK
www.alzheimers.org.uk/cjd
AMPUTATION
(see also Disabilities & Rehabilitation)
The American Amputee Foundation, Inc.
Little Rock, AR
501-666-2523
National Amputation Foundation
Malverne, NY
516-887-3600
www.nationalamputation.org
AMYLOIDOSIS
Amyloidosis Network International, Inc.
Houston, TX
888-269-5643
www.amyloidosis.org
AMYOTROPHIC LATERAL SCLEROSIS
The ALS Association
Calabasas Hills, CA
800-782-4747 (patients only);
818-880-9007
www.alsa.org
ANKYLOSING SPONDYLITIS
Spondylitis Association of America
Sherman Oaks, CA
800-777-8189
818-981-1616
www.spondylitis.org
ARTHRITIS
American Juvenile Arthritis Organization
Atlanta, GA
800-283-7800
404-965-7514
Arthritis Foundation
Atlanta, GA
800-283-7800;
www.arthritis.org
ASTHMA
(see Allergy & Asthma)
ATTENTION DEFICIT DISORDER
Attention Deficit Disorder Association
Highland Park, IL
847-432-2332
www.add.org
Children and Adults With Attention Deficit Disorders
Landover, MD
800-233-4050
www.chadd.org
Learning Disabilities Association of America
Pittsburgh, PA
412-341-1515
www.ldanatl.org
AUTISM
Autism Research Institute
San Diego, CA
619-563-6840
www.autism.tv
Autism Society of America
Bethesda, MD
800-328-8476
301-657-0881
www.autism-society.org
National Autism Hotline/Autism Services Center
Huntington, WV
304-525-8014
BALDING
National Alopecia Areata Foundation
San Rafael, CA
415-472-3780
www.alopeciaareata.com
BEREAVEMENT
(see Death & Bereavement)
BIRTH DEFECTS
(see also Cleft Palate; Spina Bifida)
Federation for Children With Special Needs
Boston, MA
800-331-0688
617-236-7210
www.fcsn.org
March of Dimes Birth Defects Foundation
White Plains, NY
888-663-4637
914-428-7100
www.modimes.org
National Foundation for Jewish Genetic Diseases, Inc.
New York, NY
212-371-1030
www.nfjgd.org
BLINDNESS & VISION PROBLEMS
American Association of the Deaf-Blind
Silver Spring, MD
800-735-2258
301-495-4403
301-495-4402 (TTY)
www.aadb.org
Association for Macular Diseases
New York, NY
212-605-3719
www.macula.org
American Council of the Blind
Washington, DC
800-424-8666
202-467-5081
www.acb.org
American Foundation for the Blind
New York, NY
800-232-5463
212-502-7600
www.afb.org
Association for the Education & Rehabilitation of the Blind & Visually Impaired
Alexandria, VA
703-823-9690
www.aerbvi.org
Fight for Sight
New York, NY
212-679-6060
www.fightforsight.com
The Foundation Fighting Blindness
Owing Mills, MD
888-394-3937
800-683-5551 (TDD);
410-568-0150
www.blindness.org
Glaucoma Research Foundation
San Francisco, CA
800-826-6693
415-986-3162
www.glaucoma.org
Helen Keller Services for the Blind
Sands Point, NY
800-255-0411
516-944-8637 (TTY)
www.helenkeller.org/national
National Association for Visually Handicapped
New York, NY
212-255-2804
www.navh.org
Prevent Blindness America
Schaumburg, IL
800-331-2020
847-843-2020
www.preventblindness.org
BLOOD DISORDERS
Leukemia & Lymphoma Society of America
White Plains, NY
800-955-4572
914-949-5213
www.leukemia.org
National Hemophilia Foundation
New York, NY
212-219-8180
www.hemophilia.org
Sickle Cell Disease Association of America, Inc.
Culver City, CA
800-421-8453
www.sicklecelldisease.org
Thalassemia Action Group
Flushing, NY
800-522-7222
718-321-2873
www.thalsite.com
BRAIN DISORDERS
(see also Cancer & Other Tumors; Alzheimer's Disease & Other Dementias; Epilepsy)
Brain Injury Association of America
Alexandria, VA
800-444-6443 (Family Helpline)
703-236-6000
www.biausa.org
National Institute of Neurological Disorders & Stroke
Bethesda, MD
800-352-9424
www.ninds.nih.gov
CANCER & OTHER TUMORS
American Cancer Society
Atlanta, GA
800-227-2345
404-320-3333
www.cancer.org
Cancer Care, Inc.
New York, NY
800-813-4673
212-712-8080
212-302-2400
www.cancercare.org
National Cancer Institute
Bethesda, MD
800-422-6237
301-496-5583
www.cancer.gov
National Coalition for Cancer Survivorship
Silver Spring, MD
301-650-9127
www.canceradvocacy.org
Patient Advocates for Advanced Cancer Treatments, Inc.
Silver Spring, MD Grand Rapids, MI
616-453-1477
www.paactusa.org
BRAIN
Acoustic Neuroma Association
Silver Spring, MD Cumming, GA
770-205-8211
www.anausa.org
American Brain Tumor Association
Des Plains, IL
800-886-2282
847-827-9910
www.abta.org
Brain Tumor Society
Watertown, MA
800-770-8287
617-924-9997
www.tbts.org
The Children's Brain Tumor Foundation
New York, NY
866-228-4673 (toll free)
212-448-9494
www.cbtf.org
National Brain Tumor Foundation
Oakland, CA
800-934-2873
www.braintumor.org
Pituitary Network Association
Thousand Oaks, CA
805-499-9973
www.pituitary.com
BREAST
National Alliance of Breast Cancer Organizations
New York, NY
888-806-2226
www.nabco.org
The Susan G. Komen Breast Cancer Foundation
Dallas, TX
800-462-9273
972-855-1600
www.komen.org
Y-ME: National Breast Cancer Organization
Chicago, IL
800-221-2141
312-986-8338
www.y-me.org
PROSTATE
US-TOO International
Downers Grove, IL
800-808-7866
630-795-1002
www.ustoo.com
SKIN
The Skin Cancer Foundation
New York, NY
800-754-6490
www.skincancer.org
CARDIOVASCULAR DISORDERS
American Heart Association
Dallas, TX
800-242-8721
214-373-6300
www.americanheart.org
Heart and Stroke Foundation of Canada
Toronto, Ontario, Canada
416-489-7111
www.heartandstroke.ca
National Heart, Lung, and Blood Institute
Bethesda, MD
301-251-1222
www.nhlbi.nih.gov
National Stroke Association
Englewood, CO
800-787-6537
303-649-9299
www.stroke.org
Sister Kenny Institute
Minneapolis, MN
612-863-4457
www.sisterkennyinstitute.com
Vascular Disease Foundation
Lakewood, CO
866-723-4636 (toll free)
303-949-8337
www.vdf.org
CEREBRAL PALSY
United Cerebral Palsy Associations, Inc.
Washington, DC
800-872-5827
202-776-0406
202-973-7197 (TTY)
www.ucpa.org
CHILD ABUSE & NEGLECT
American Humane Association, Children's Division
Englewood, CO
800-227-4645
303-792-9900
www.amerhumane.org
Kempe Children's Center
Denver, CO
303-864-5252
www.kempecenter.org
CHILDBIRTH/PREGNANCY
(see also Family Planning; Infertility)
America's Crisis Pregnancy Helpline
Dallas, TX
800-672-2296
www.thehelpline.org
Maternity Center Association
New York, NY
212-777-5000
www.maternitywise.org
CLEFT PALATE
Cleft Palate Foundation
Chapel Hill, NC
800-242-5338
www.cleftline.org
Wide Smiles
Stockton, CA
209-942-2812
www.widesmiles.org
CYSTIC FIBROSIS
Cystic Fibrosis Foundation
Bethesda, MD
800-344-4823
301-951-4422
www.cff.org
DEAFNESS & HEARING DISORDERS
Alexander Graham Bell Association for the Deaf and Hard of Hearing
Washington, DC
800-432-7543
202-337-5220
202-337-5221 (TTY)
www.agbell.org
American Association of the Deaf-Blind
Silver Spring, MD
800-735-2258
301-495-4403
301-495-4402 (TTY)
www.aadb.org
American Society for Deaf Children
Gettysburg, PA
800-942-2732 (Parent Hotline)
717-334-7922
www.deafchildren.org
American Tinnitus Association
Portland, OR
800-634-8978
503-248-9985
www.ata.org
Deafness Research Foundation
Washington, DC
800-829-5934
202-289-5850
www.drf.org
The Ear Foundation
Nashville, TN
800-545-4327
615-284-7807
www.earfoundation.org
Helen Keller National Center
Sands Point, NY
800-255-0411
516-944-8637 (TTY)
www.helenkeller.org/national
National Association of the Deaf
Silver Spring, MD
301-587-1788
301-587-1789 (TTY)
www.nad.org
DEATH & BEREAVEMENT
Aiding Mothers and Fathers Experiencing Neonatal Death (AMEND)
St. Louis, MO
314-487-7582
www.amendgroup.com
The Compassionate Friends
Oak Brook, IL
877-969-0010
630-990-0010
www.compassionatefriends.org
The Hemlock Society USA
Denver, CO
800-247-7421
www.hemlock.org
Hospice Education Institute
Machiasport, ME
800-331-1620
207-255-8800
www.hospiceworld.org
National Hospice Foundation
Alexandria, VA
703-516-4928
www.hospiceinfo.org
Partnership for Caring
Washington, DC
800-989-9455
202-296-8071
www.partnershipforcaring.org
DEMENTIA
(see Alzheimer's Disease & Other Dementias)
DEPRESSION
(see also Psychiatric Disease)
Depression and Related Affective Disorders Association (DRADA)
Baltimore, MD
410-955-4647
www.drada.org
National Depressive and Manic-Depressive Association
Chicago, IL
800-826-3632
312-642-0049
www.ndmda.org
Recovery, Inc.
Chicago, IL
312-337-5661
www.recovery-inc.com
DIABETES
American Diabetes Association
Alexandria, VA
800-342-2383
www.diabetes.org
The Juvenile Diabetes Foundation International
New York, NY
800-533-2873
212-785-9500
www.jdrf.org
National Institute of Diabetes & Digestive & Kidney Diseases
Bethesda, MD
301-654-3327
301-435-0714
www.niddk.nih.gov
DIGESTIVE DISORDERS
Crohn's & Colitis Foundation of America
New York, NY
800-343-3637
www.ccfa.org
Digestive Disease National Coalition
Washington, DC
202-544-7497
www.ddnc.org
International Foundation for Functional Gastrointestinal Disorders
Milwaukee, WI
889-964-2001
414-964-1799
www.iffgd.org
Intestinal Disease Foundation
Pittsburgh, PA
877-587-9606
412-261-5888
www.intestinalfoundation.org
National Digestive Diseases Information Clearinghouse
Bethesda, MD
800-891-5389
301-654-3810
www.niddk.nih.gov
United Ostomy Association
Irvine, CA
800-826-0826
949-660-8624
www.uoa.org
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DISABILITIES & REHABILITATION
(see also Amputation; Mental Retardation)
Disabled American Veterans
Cold Springs, KY
877-726-2838
859-441-7300
www.dav.org
Easter Seals
Chicago, IL
800-221-6827
312-726-6200
312-726-4258 (TTY)
www.easter-seals.org
National Organization on Disability
Washington, DC
202-293-5960
www.nod.org
National Rehabilitation Information Center
Lanham, MD
800-346-2742
www.naric.com
National Rehabilitation Association
Alexandria, VA
888-258-4295
703-836-0850
www.nationalrehab.org
Paralyzed Veterans of America
Washington, DC
800-424-8200
202-872-1300
www.pva.org
DOWN SYNDROME
Association for Children With Down Syndrome
Plainview, NY
516-933-4700
www.acds.org
National Down Syndrome Congress
Atlanta, GA
800-232-6372
770-604-9500
www.ndsccenter.org
National Down Syndrome Society
New York, NY
800-221-4602
www.ndss.org
DRUG ABUSE
(see also Alcoholism)
Cocaine Anonymous World Service
Los Angeles, CA
800-347-8998
310-559-5833
www.ca.org
Hazelden
Center City, MN
800-257-7810
651-213-4000
www.hazelden.org
Narcotics Anonymous
Van Nuys, CA
818-997-3822
www.na.org
EAR
(see Deafness & Hearing Disorders)
EATING DISORDERS
National Association of Anorexia Nervosa and Associated Disorders
Highland Park, IL
847-831-3438
www.anad.org
Overeaters Anonymous
Rio Rancho, NM
505-891-2664
www.overeatersanonymous.org
ENDOCRINE DISORDERS
(see also Diabetes)
National Adrenal Diseases Foundation
Great Neck, NY
516-487-4992
www.medhelp.org/nadf
Thyroid Foundation of America
Boston, MA
800-832-8321
617-726-8500
www.tsh.org
EPILEPSY
Epilepsy Foundation of America
Landover, MD
800-332-1000
www.efa.org
ERECTILE DYSFUNCTION (IMPOTENCE)
Impotents Anonymous
Maryville, TN
615-983-6064
EYE
(see Blindness & Vision Problems)
FAMILY PLANNING
(see also Childbirth/Pregnancy; Infertility)
Planned Parenthood Federation of America
New York, NY
212-541-7800
www.plannedparenthood.org
GAUCHER'S DISEASE
National Gaucher Foundation
Rockville, MD
800-925-8885
800-428-2437
www.gaucherdisease.org
GENERAL
American Academy of Family Physicians
Leawood, KS
www.familydoctor.org
American Academy of Neurology
1080 Montreal Avenue
Saint Paul, MN
800-879-1960
www.aan.com
American Academy of Pediatrics
Elm Grove Village, IL
847-434-4000
www.aap.org
American Medical Association
Chicago, IL
312-464-5000
www.ama-assn.org
Centers for Disease Control and Prevention
Atlanta, GA
800-311-3435
404-639-3311
www.cdc.gov
The Merck Manuals
Merck & Co., Inc.
West Point, PA
www.merckmanuals.com
National Institutes of Health
Bethesda, MD
301-496-4000
www.nih.gov
US Department of Health and Human Services
Washington, DC
877-696-6775
202-619-0257
www.os.dhhs.gov
US Food and Drug Administration
Office of Consumer Affairs Inquiry Information Line
Rockville, MD
888-463-6332
www.fda.gov
Electronic Orange Book
Approved Drug Products With Therapeutic Equivalence Evaluations
www.fda.gov/cder/ob/default
GENETIC DISEASES
(see also Birth Defects)
Alliance of Genetic Support Groups
Washington, DC
202-966-5557
www.geneticalliance.org
HEADACHE
American Council for Headache Education
Mt. Royal, NJ
800-255-2243
856-423-0258
www.achenet.org
National Headache Foundation
Chicago, IL
888-643-5552
773-388-6399
www.headaches.org
HEAD INJURY
(see Brain Disorders)
HEARING
(see Deafness & Hearing Disorders)
HEART DISORDERS
(see Cardiovascular Disorders)
HEMOCHROMATOSIS
American Hemochromatosis Society
Lake Mary, FL
407-829-4488
www.americanhs.org
Hemochromatosis Foundation, Inc.
Albany, NY
518-489-0972
www.hemochromatosis.org
Iron Overload Diseases Association
North Palm Beach, FL
561-840-8512
www.ironoverload.org
HOME CARE
National Association for Home Care
Washington, DC
202-547-7424
www.nahc.org
HOSPICES
(see Death & Bereavement)
IMPOTENCE
(see Erectile Dysfunction)
INCONTINENCE
National Association for Continence
Spartanburg, SC
800-252-3337
864-579-7900
www.nafc.org
The Simon Foundation for Continence
Wilmette, IL
800-237-4666
INFERTILITY
(see also Childbirth/Pregnancy; Family Planning)
American Society for Reproductive Medicine
Birmingham, AL
202-978-5000
www.asrm.org
Ferre Institute, Inc.
Binghamton, NY
607-724-4308
www.ferre.org
Resolve: The National Infertility Association
Somerville, MA
888-623-0744
www.resolve.org
IRON OVERLOAD
(see Hemochromatosis)
KIDNEY DISORDERS
American Association of Kidney Patients
Tampa, FL
800-749-2257
www.aakp.org
American Kidney Fund
Rockville, MD
800-638-8299
www.akfinc.org
National Kidney Foundation
New York, NY
800-622-9010
212-889-2210
www.kidney.org
National Kidney and Urologic Diseases Information Clearinghouse
Bethesda, MD
800-891-5390
301-654-4415
www.niddk.nih.gov
LEARNING DISABILITIES
(see also Attention Deficit Disorder)
American Association on Mental Retardation
Washington, DC
800-424-3688
202-387-1968
www.aamr.org
Learning Disabilities Association
Pittsburgh, PA
412-341-1515
www.ldanatl.org
National Center for Learning Disabilities
New York, NY
888-575-7373
212-545-7510
www.ncld.org
LEPROSY
American Leprosy Foundation
Rockville, MD
301-984-1336
www.charity.org/alf.html
LIVER DISORDERS
American Liver Foundation
New York, NY
800-465-4837
212-668-1000
www.liverfoundation.org
LUNG DISORDERS
(see Respiratory Disorders)
LUPUS
Lupus Foundation of America
Rockville, MD
800-558-0121
301-670-9292
www.lupus.org
MEDIC ALERT
MedicAlert Foundation
Turlock, CA
888-633-4298
209-668-3333
www.medicalert.org
MENTAL HEALTH
(see Depression and Psychiatric Disease)
MENTAL RETARDATION
(see also Learning Disabilities)
The ARC of the United States (formerly Association for Retarded Citizens of the United States)
Silver Spring, MD
301-565-3842
www.thearc.org
FRAXA Research Foundation
Newburyport, MA
978-462-1866
www.fraxa.org
The Joseph P. Kennedy, Jr. Foundation
Washington, DC
202-393-1250
www.jpkf.org
National Association of Developmental Disabilities Councils
Washington, DC
202-347-1234
www.naddc.org
Voice of the Retarded
Rolling Meadows, IL
847-253-6020
www.vor.net
MOVEMENT DISORDERS
(see also Parkinson's Disease)
We Move
204 West 84th Street
New York, NY 10024
www.wemove.org
MULTIPLE SCLEROSIS
National Multiple Sclerosis Society
New York, NY
800-344-4867
212-986-3240
www.nmss.org
MUSCULAR DYSTROPHY
Muscular Dystrophy Association-USA
Tucson, AZ
800-572-1717
www.mdausa.org
MYASTHENIA GRAVIS
Myasthenia Gravis Foundation of America
Minneapolis, MN
800-541-5454
952-545-9438
www.myasthenia.org
NUTRITION
American Dietetic Association
Chicago, IL
800-877-1600
312-899-0040
www.eatright.org
OSTEOPOROSIS
National Osteoporosis Foundation
Washington, DC
202-223-2226
www.nof.org
PAGET'S DISEASE
The Paget Foundation
New York, NY
800-237-2438
212-509-5335
www.paget.org
PAIN RELIEF
American Chronic Pain Association
Baltimore, MD
888-615-7246
www.painfoundation.org
PARKINSON'S DISEASE
American Parkinson Disease Association
Staten Island, NY
800-223-2732
718-981-8001
www.apdaparkinson.com
National Parkinson Foundation
Miami, FL
800-327-4545
800-433-7022 (in FL)
www.parkinson.org
Parkinson's Action Network
Alexandria, VA
800-850-4726
703-518-8877
www.parkinsonsaction.org
Parkinson's Disease Foundation
New York, NY
800-457-6676
212-923-4700
www.pdf.org
PRADER-WILLI SYNDROME
Prader-Willi Syndrome Association (USA)
Sarasota, FL
800-926-4797
941-312-0400
www.pwsausa.org
PREGNANCY
(see Childbirth/Pregnancy)
PROSTATE DISORDERS
(see also Cancer & Other Tumors)
The Prostatitis Foundation
Smithshire, IL
888-891-4200
www.prostatitis.org
PSORIASIS
National Psoriasis Foundation
Portland, OR
800-723-9166
503-244-7404
www.psoriasis.org
PSYCHIATRIC DISEASE
(see also Depression)
National Alliance for the Mentally Ill
Arlington, VA
800-950-6264
703-524-7600
www.nami.org
National Institute of Mental Health
Bethesda, MD
301-443-4513
www.nimh.nih.gov
National Mental Health Association
Alexandria, VA
800-969-6642
800-443-5959 (TTY)
703-684-7722
www.nmha.org
Metanoia
800-784-2433
www.metanoia.org/suicide
Survivors of Suicide
www.thewebpager.com/sos
RARE DISORDERS
National Organization for Rare Disorders
Danbury, CT
800-999-6673
203-744-0100
www.rarediseases.org
RESPIRATORY (LUNG) DISORDERS
American Lung Association
New York, NY
800-586-4872
212-315-8700
www.lungusa.org
Asthma & Allergy Foundation of America
Washington, DC
800-727-8462
202-466-7643
www.aafa.org
REYE'S SYNDROME
National Reye's Syndrome Foundation
Bryan, OH
800-233-7393
419-636-2679
www.reyessyndrome.org
SJöGREN'S SYNDROME
National Sjögren's Syndrome Association
Bethesda, MD
800-475-6473
www.sjogrens.org
SLEEP DISORDERS
American Sleep Apnea Association
Washington, DC
202-293-3650
www.sleepapnea.org
SPINA BIFIDA
Spina Bifida Association of America
Washington, DC
800-621-3141
202-944-3285
www.sbaa.org
SPINAL CORD INJURY
National Spinal Cord Injury Association
Bethesda, MD
800-962-9629
301-588-6959
www.spinalcord.org
STUTTERING & OTHER SPEECH DISORDERS
National Council on Stuttering & Foundation for Fluency
Dekalb, IL
815-756-6986
National Stuttering Association
Anaheim Hills, CA
800-364-1677
www.nsastutter.org
Stuttering Foundation of America
Memphis, TN
800-992-9392
901-452-7343
www.stuttersfa.org
SUDDEN INFANT DEATH SYNDROME
SIDS Network
Ledyard, CT
www.sids-network.org
Sudden Infant Death Syndrome Alliance
Baltimore, MD
800-221-7437
410-653-8226
www.sidsalliance.org
TAY-SACHS DISEASE
National Tay-Sachs & Allied Diseases Association
Brighton, MA
800-906-8723
www.ntsad.org
TRANSPLANTATION
United Network for Organ Sharing
Richmond, VA
888-894-6361
www.unos.org
TRAVEL HEALTH
CDC National Center for Infectious Diseases
Travelers' Health
888-394-8747
www.cdc.gov/travel
Federal Aviation Administration
Information for the Air Traveler With a Disability
www.faa.gov
International Association for Medical Assistance to Travelers
Lewiston, NY
716-754-4883
www.iamat.org
International SOS
Trevose, PA
800-523-8930
215-244-1500
www.internationalsos.org
International Society of Travel Medicine
www.istm.org
Travel Health Online
www.tripprep.com
US Government Printing Office
International Certificate of Vaccination as Approved by the World Health Organization
www.access.gpo.gov
US State Department
Help for Americans Abroad
www.travel.state.gov/acs
World Health Organization
International Travel and Health
www.who.int/ith
WOMEN'S HEALTH
(see also Aging)
American College of Obstetricians and Gynecologists
Washington, DC
202-638-5577
202-863-2518
www.acog.org
National Women's Health Network
Washington, DC
202-347-1140
www.womenshealthnetwork.org |
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